Stigma blog: Off-The-Wall–a Street Survival Journal (8-11-18) forwarded to State Representative

Assigned the task of advocating for special needs trust recipients, I begin this journal of my off-the-wall crazy financial situation. I hope it will be used to make changes in the laws for special needs trusts. Here’s a scenario why:

A person with Down’s Syndrome has a Special Needs Trust and she needs her insulin ASAP but the trustee has refused to pay the health insurance and she can’t get the insulin. Her diabetic coma is ignored and she cannot call 911 because the trustee doesn’t want her to have a phone. If she dies, all her trust money goes to his kids.

He has a history of theft, but no criminal record because the family did not want the shame of calling him to task legally. They thought he grew out of his youthful larceny. They were wrong. The millions he was tasked to manage were too much of a temptation. She dies with no advocate and her life is forgotten. She was disabled but with assets and so was the biggest mark of all. No group advocates for her because she is a person of means and so has it all, in theory–she never has to work and her parents provided for her and she was left millions.

She was, however, a sitting duck for the modern-day Cain who lusted after the Dis-Abeled (sic) sibling. And she was slain for her assets because no one cared enough.

This is fiction, but it could well happen and probably has with some variation on this theme, because there are no checks and balances, nothing to stop unethical trustees who are not professionals in financial management firms from getting away with abuse and neglect and worse. Who would investigate her death? Who would care?

Indeed, who?

I propose street-smart laws to keep in check the white collar criminals who can get away with murder, potentially. I am going to have a contest to see what institutions care for those with special needs and write about what I find because I myself am in a fiscal crisis that is engineered by an untrustworthy trustee. The places that help will get future business from people of wealth who want to be sure the above situation never happens to their loved one. So, game on!

The first prize goes to Montana Governor Bullock who answered my plea for help with an email the very next day. He has a mission to get the State and the country back to work and I am in Vocational Rehabilitation and am determined to work again. So, kudos to Gov. Bullock and I hope and pray to be able to find a way to use my training in writing to effect change. It takes someone who has some street experience in navigating these landmines, and I do qualify for that task. I’ve lived through homelessness and yet am determined not just to survive but to thrive, Go-d willing…

And so begins this oddity of a Homeric, epic quest to get my own financial house in order and drive out the money-changers all at the same time…it’s time for a sea-change, indeed…All aboard this ship of foolishness–necessity is the mother of legal intervention in the dire straits of perilous trusts sans protection for the innocent marks…Ahoy!

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